Today was a better day for Tom. I had planned to stay at home until after school hours to get in a block of time of chores. During that time, Tom called me twice from the hospital and our conversation was good. I didn’t have any trouble understanding him. Tom was giving me updates and today’s plan. An Echo test was performed to make sure the heart is good and not affected by the meds. Another continuous EEG was put into place to capture one of the “Blackouts” that Tom has been having since last Friday. Naturally, Tom had a small one prior the EEG. The nurse said today was a good day. Overnight was better too. By the afternoon, Tom was down to four IV’s and his new parameters for the blood pressure is 120-200.
Noah came to visit and brought a chess board along. Noah won! Tom enjoyed all visits today, the books to read, and special drawings or messages. He is also messing with the EEG monitor. He likes to watch the monitor and make it move around. Yes, he’s bored.
Continue to pray for a solution to this mystery, and get Tom out of ICU.
As Noah said to his Daddy, “Night Daddy, I love you.”